r/rheumatoid • u/Speed_demon1233221 • 9h ago
This project helps me a lot and if you have an FSA card Amazon takes it!
It heats and it massages at different temperatures/ levels! It also comes with cold packs to insert! Product ***
r/rheumatoid • u/KraftyPants • Jul 16 '24
FAQS
What is this? Could it be? Anyone else?
Posts containing symptoms, bloodwork results, photos, etc. asking what they mean/ does anyone else have them/ any iteration of “is this arthritis” will be removed.
Autoimmune arthritis can affect anything in the body. So yes, chances are likely that whatever you’re experiencing has been experienced by someone here. It’s an unhelpful metric because of how wide of a range of symptoms there are and how they may not necessarily be from arthritis.
Medications
Every single person is different and there’s no way to predict what will work for any person or who will experience side effects. If you’re having side effects ask your Dr. or pharmacist. Side effects are also listed online. Also keep in mind the benefits of the medications outweigh the risk of medication side effects. Yes, even the black box ones. If you have an issue with taking meds and fear of side effects that’s a conversation to have with your medical team, not here.
What caused it?
Nothing causes RA. It’s an autoimmune disease that is underlying but can be “triggered” by any stressor. This can be anything that triggers an immune response (illness, stress, injury, etc.)
Inflammatory Markers/ Seronegative arthritis
Yes, arthritis can be active without positive inflammatory markers. It’s pretty common in certain types of arthritis (such as JIA). You also can have inflammatory markers without any arthritis. Inflammatory markers alone cannot diagnose or rule out any autoimmune disease.
Inflammatory markers fluctuate all the time. Don’t rely on individual bloodwork results, you need to see how they’ve changed over time.
RESOURCES
General Info
~American College of Rheumatology (ACR)~
~The Johns Hopkins Arthritis Center~
~Centers for Disease Control and Prevention~
Step Therapy
Step therapy is when your insurance requires you to fail drugs A, B, and C before approving and paying for drug D. Many states have step therapy protections. You can find what your rights are and how to appeal the denial here:
Co-Pay Assistance Programs
Actemra: ~https://www.racopay.com/~
Acthar: ~https://www.actharhcp.com/acthar-patient-support/access-support/~
Benlysta: ~https://www.benlysta.com/benefits-and-savings/~
Celebrex: ~https://www.celebrex.com/savings~
Cellcept: ~https://www.cellcept.com/patient/cost-and-financial-assistance/copay-form.html~
Cimzia: ~https://www.cimzia.com/co-pay~
Cosentyx: ~https://www.cosentyx.com/psoriatic-arthritis/treatment-cost~
Enbrel: ~https://www.enbrel.com/enbrel-cost~
Humira: ~https://www.humira.com/humira-complete/cost-and-copay~
Ilaris: ~https://www.ilaris.com/ilaris-savings-support~
Inflectra: ~https://www.pfizerencompass.com/hcp/inflectra/coverage-reimbursement~
Kevzara: ~https://www.kevzara.com/starting-kevzara/kevzaraconnect-copay-card/#~
Kineret: ~https://www.kineretrx.com/ra/kineret-on-track~
Krystexxa: ~https://www.krystexxahcp.com/rheumatology/support-and-resources/support-for-your-patients~
Lyrica: ~https://www.lyrica.com/Lyrica_Co-pay_Download~
Movantik: ~https://movantik.com/savings/~
Naprelan: ~https://www.naprelanus.com/~
Neoral: ~http://www.neoral.com/hcp/index.jsp~
Orencia: ~https://www.orencia.com/support-savings/on-call~
Otezla: ~https://www.otezla.com/plaque-psoriasis/cost-and-copay~
Otrexup: ~https://www.otrexup.com/patient~
Prolia: ~https://www.amgensupportplus.com/copay~
Remicade: ~https://remicade.janssencarepathsavings.com/#/app/home~
Renflexis: ~https://www.organonaccessprogram-renflexis.com/hcc/infusion-copay-cost-assistance/~
Rituxan: ~https://www.racopay.com/~
Savella: ~https://www.savella.com/savings-and-resources~
SImponi: ~https://simponi.janssencarepathsavings.com~
Simponi Aria: ~https://simponiaria.janssencarepathsavings.com/#/app/home~
Stelara: ~https://stelara.janssencarepathsavings.com/#/app/home~
Taltz: ~https://taltz.lilly.com/savings-support~
Uloric: ~https://www.uloric.com/savings/card.aspx~
Xeljanz: ~https://www.xeljanz.com/savings-and-support/#co-pay-savings-program~
Zurampic: ~https://www.zurampichcp.com/zurampic-savings-card~
r/rheumatoid • u/KraftyPants • Apr 29 '23
Do not post your list of symptoms, bloodwork results, pics of your joints, etc to ask us if it "could be" RA/what we think it could be, or any other form of the question wanting us to tell you what you (may) have. We are not r/AskDocs. Do not use this sub as such. Do not ask us to interpret your bloodwork, imaging, or other test results. That is an inappropriate use of this sub. This is a support group, not your doctor's office.
r/rheumatoid • u/Speed_demon1233221 • 9h ago
It heats and it massages at different temperatures/ levels! It also comes with cold packs to insert! Product ***
r/rheumatoid • u/SpecialistChance5157 • 9h ago
I was recently diagnosed with seropositive RA.Do seropositive RA patients always develop deformities in the future?I am very worried about this. I am only 21 years old.I will have to deal with this condition for the rest of my life. What can I expect for the future? Is it possible—with modern treatments—to live a life free from physical deformity?m...My RF is 24.7, and Anti ccp is 49.2... do these numbers ever change? I am very worried about my future.Those of you here who are seropositive, please share your stories. It would bring me peace of mind to hear that you have positive outcomes and are living a life free from deformities.....
r/rheumatoid • u/Loose_Ad8692 • 6h ago
Hi everyone
Thanks for reading
I (F28) was diagnosed in May with fibromyalgia and early stages of RA. My esr and rf came back high, but not like 1000s higher than it’s supposed to be. Plus I am in constant pain, specifically in my neck, back, knees, and hands.
What throws me off is that it’s not my joints in my fingers that swell per se. It’s usually the surrounding areas like the each part of my finger is swollen BESIDES around the joint. Some of my fingers are a bit crooked now though. Also only certain knuckles swell while the others stay normal. My hands look completely different than a few years ago. I’m small and had very petite fingers my whole life up until this year. Now i look like a 65 year old construction worker lol. My knees do well but only on one side. Both are very painful, but one is constantly swollen while the other goes back and forth. As a matter of fact, I have to get an xray of my right knee tomorrow because my rhum was concerned I might’ve injured it somehow.
I also have extreme fatigue, I feel like i have the flu a better part of every month, I get fevers randomly sometimes, terrible sleep and stress management, and very intense body pain. I hurt to the touch. If you squeeze my arm or hands I will yell.
So long story long, I have imposter syndrome because I was told I was dramatic my whole life. These issues started over ten years ago but I never looked into it cause I was either “dramatic” or “need to lose weight”. I lost the weight and nothing got better. Maybe even got worse. I was just wondering if anyone noticed these symptoms early in their diagnosis.
Like does it make sense that certain things swell and not always the joint but like all around it? My doc says because of my bloodwork she’s not convinced it’s just fibromyalgia and there’s full blown RA coming in my near future.
I added some pics of how my hands look before and after meloxicam. Any stories are appreciated.
r/rheumatoid • u/JMurph3313 • 10h ago
Just wanted to tell someone. My symptoms are mild but we found bone erosions on my right hand via MRI. Doc went ahead with seronegative RA dx and noted that it could change if new symptoms appear that clarify the picture. He's starting me on methotrexate injections (I requested thanks to info I found here about minimizing GI side effects) with a check-in in two months.
I'm so grateful to this community for helping me wrap my head around all this, thank you so much for your posts and comments...I was not one bit scared in that appointment and was able to ask informed questions, and I left feeling good about managing my condition.
Wishing you all the best and I'll be around!
r/rheumatoid • u/questioninghuman2 • 4h ago
Hi, hoping for guidance. Got diagnosed with Inappropriate Sinus Tachycardia recently. Already have RA overlapping with lupus, chronic migraines and endometriosis so all the meds that come along with them. Cardiologist advised compression wear, salt intake, some light cardio (when my RA allows) and as already on propanol for migraines no other meds needed.
All grand til last week, had a very busy day in work and knew it’d cause an RA flare. But since then I am in a heap. Can’t walk any distance without dizziness, nausea, chest pain, abdo pain, struggling to breath. I tried to have a shower and it felt like I was dying 😅 okay when sitting and lying down but if I try go up my stairs I vomit. Was sent to a&e by my GP and they said it was low blood pressure plus dehydration. Got a saline drip which slightly helped but they sent me home saying not sure day causing it and must be all my meds. Soooo, do I reach out to my rheumatologist or my cardiologist?
I am in an RA flare with joint pain so may be linked. Also haven’t been able to eat lately due to nausea so that prob didn’t help. Just not sure who to go to next. A&e said my GP but they have many prescribed any of my meds so feel like that would be pointless. Any suggestions welcome !
r/rheumatoid • u/Mysterious_Oil4511 • 19m ago
Hi. I’m a 38-year-old woman and a homemaker. I was recently diagnosed with rheumatoid arthritis. I’ve noticed changes in my fingers, they seem to be developing ulnar deviation, and my joint pain is getting worse. I’m wondering if these two things are related. Could you tell me if this means my condition is progressing? I’ve been thinking about buying a hand brace to help correct the ulnar deviation. Will this help? Does anyone have any splint recommendations?
r/rheumatoid • u/Exciting_Chart3692 • 2h ago
i started MTX 6 weeks ago. got the flu shot yesterday. i take my dose of mtx on mondays. i will call the rheumatologist tomorrow but am asking here to get an idea. i also need to get my covid booster so should i just book the booster for the weekend and get both vaccines over with at the same time? also i'm sick at the moment with the flu if that's relevant
also dw i won't go off any meds without consulting my doctor first😭
r/rheumatoid • u/Lr20005 • 9h ago
Has methotrexate helped any of you with joint swelling in fingers or toes? Joint swelling in the toes is my main symptom at the moment. Doctor mentioned Humira plus methotrexate, but I’m considering asking to start with just the MTX for a few months to see if it helps. *I’ve already been on hydroxychloroquine for a year and that hasn’t resolved the issue.
r/rheumatoid • u/sperey • 11h ago
Why is it soooooo difficult to get through to nurses at whipps cross. That dreaded message "the user you are trying to call is not logged in, please try again later, goodbye!"
It is so hit and miss whether you will get through or not.
r/rheumatoid • u/HauntingSeesaw7971 • 11h ago
Hi everyone, I started plaquenil in august and have been having some decent improvements with my pain/exhaustion/inflammation. However, I have also had a few weird thing happen in the past month or so that I can’t tell if my body is not liking the plaquenil or if its just malfunctioning as per usual. I do have a doctors appointment scheduled. I just was wondering in the meantime if this is something others have experienced.
Face skin drying up and peeling. I have always had dryer skin but since I started plaq I have had a few instances where all the skin on my whole face dried up and started peeling off. Not like big chunks but little flakes that were mildly itchy.
An eye twitch. About 3 weeks ago I started getting an intermittent twitch in the muscles of my left eye that has continued every day. I haven’t had any other vision issues which I know can be a problem with plaquenil but my eye muscles are starting to get sore from all the twitching.
r/rheumatoid • u/Speed_demon1233221 • 1d ago
Just trying to get through this phase until my body recovers enough to take care of myself. Feel free to message me. We got this, we are survivors, and this will past remember that. The hardest time will pass.
r/rheumatoid • u/ProgramFormer8296 • 14h ago
Är det någon som står på biologisk läkemedel utan metotrexat och det fungerar bra? Står själv på humira och metotrexat 10 mg, men blir väldigt trött/sliten och lite illamående av metotrexat så vill gärna sluta med det. Men är orolig att utveckla antikroppar mot humira då? Vet inte hur stor risken är egentligen? Några erfarenheter där?
r/rheumatoid • u/Emgirl29 • 1d ago
Hi everyone, diagnosed in March and been taking 15mg of methotrexate (6 tablets) on a Tuesday night before bed at 9pm. I take 5mg of folic acid every day except the methotrexate day. I take the folic acid the next day at 9am so around 12 hours later.
Thankfully, my pain is almost completely gone and has been like that when I was 3 months into methotrexate. I now have a new job where I head into the office on a Wednesday so I take the methotrexate Tuesday night at 9pm then the folic acid at 6:30am on the Wednesday.
I’ve not had issues with this before but lowered the gap between them when I started this job in June.
Am I not getting the most out of my tablets as I’m taking folic acid too close? But what’s the alternative? Tuesday 9pm methotrexate, Wednesday 9pm folic acid, then back to Thursday at 9am??
Any thoughts? How long do you leave in between? Thanks!
r/rheumatoid • u/Candid-Butterscotch2 • 1d ago
So I was prescribed enbrel mini. I finally got Optum to send the cartridges. I never was provided the actual sure click part to put them in for dispensing. I tried to contact Embrel. The first time they said they couldn’t without a prescription. So I contacted my doctors office. They said to try contacting enbrel in a few days. So I contacted Enbrel again, this time they said they never provide them and that my doctor’s office has it and needs to provide it. My doctors office doesn’t just have these sitting around to give to people. And are the ones that told me to contact Embrel. So I decided to ask Optum. They said they don’t have them and tried to put me in contact with someone else who just basically linked me to an answering machine.
How do I get the injector part? I don’t get why this is so difficult. Any suggestions on who to contact to get it?
r/rheumatoid • u/SpecialistChance5157 • 1d ago
I was diagnosed with seropositive RA last month at the age of just 21; I had been experiencing symptoms for three to four months. I have become so worried and burdened by this that I cannot think of anything else—it feels as though my entire world has changed. I no longer feel like my old self, and I find no joy in the things I used to love.
I am only 21 years old, and my entire life lies ahead of me. What can I expect for my future now? Could those of you who are seropositive share your positive experiences—how you’ve managed to move past the initial depression, maintain a positive outlook, and lead a normal life? Also, how effective is the treatment for this condition?
I am a college student now.Will I be able to achieve the goals I set for my life—regarding my education and career—and become successful?
The new treatment is having a very negative effect on my body; I am currently on prednisolone and hydroxychloroquine.I am suffering a great deal due to the side effects of Prednisolone and I am so weak right now that I cannot even leave the house, which is breaking me down even further..This is bringing even more negativity into my life... can I move past all this and look forward to a better future?... I am sinking deeper into depression every day... how can I get back to who I used to be?
r/rheumatoid • u/PBJ155 • 1d ago
What’s your go-to plan for eating when you’re flaring? Especially eating healthy-ish and not just getting DoorDash or eating super processed foods. I’m talking when the most you can do is shuffle to the kitchen and throw something in the microwave or air fryer. My elbows and hands have been flared really bad the last couple weeks and it’s been rough. I’ve definitely caved on DoorDash too much and it’s getting pricey. Does anyone use Factor or any ready made meal services? Or just stock up on some frozen dinners from the grocery store?
r/rheumatoid • u/TheDayImHaving • 1d ago
I am about 7 weeks into a biologic (Humira) for the first time ever on a biologic. I have the dry eye BAD. Is this something that eventually resolves as my body adjusts? I initially had some headaches as well which is uncommon for me. That seems to have resolved.
The upside is that I almost immediately lost 10 pounds without trying. This has to be inflammation reduction. I have almost always had borderline high blood pressure which I have read is common with disease like RA but the doctors I have seen have disagreed. After 7 weeks my BP is down to the best number (especially the lower number) I have ever had. My fatigue also seems much less severe. Really hoping that isnt the placebo effect.
Wishing you all a comfortable productive day!
r/rheumatoid • u/Ill_Main6341 • 1d ago
I currently take on Wednesday evening, but I really want to move to a Tuesday, as it would be far less impactful for my life.
Have you ever moved back 1 day and is jt okay to do so? Did it make the side effects worse ?
I am on 15mg been working the dose up and last week was the first time on 15mg.
I take folic acid 5mg 48 hours after
Thanks 🙏
r/rheumatoid • u/Efficient-Caramel417 • 1d ago
I’m 29m showed symptoms of RA as far back as 17 didn’t get diagnosed till 19 and couldn’t get treatment until 20. Currently waiting to get back on treatment I was on humira. It don’t reduce the pain or flare ups at all. Just stopped progression. I can’t work a real job and I was black balled even with a lawyer from disability. I can’t make freinds or date or do anything. I only work rideshare as that’s all I can do. How am I supposed to live like this? How am I supposed to keep going when I’m completly alone, have no freinds will never have a romantic partner and can’t participate in any part of human life that’s enjoyable? I just can’t figure out how to do this. All I do is work and cry. I have nothing. I don’t know how to survive this anymore. It’s been over a decade of suffering and it never once got any better. Anyone have any advice or something I don’t know what to do anymore.
r/rheumatoid • u/auberg91 • 1d ago
Has anyone gotten a waiver to enter countries that require this vax? Given my RA and the biologic I am taking, I would have to go off meds for several months to get this vaccine.
If this is you…can you share your border-crossing experience? Did you also have an official letter from your doctor? Thanks
r/rheumatoid • u/Speed_demon1233221 • 2d ago
It’s embarrassing and this world isn’t equipped for disabled people, I just need to vent. I’ve always taken care of other people and now needed to have people support me is so hard.
r/rheumatoid • u/Consistent_Pop_3667 • 1d ago
Hi everyone,
I’ve been diagnosed with RA since I was 18 and now 30. I get random flare ups and intermittently on and off meds but now trying to stay consistent. Humira prev saved me but now insurance doesn’t cover it so now I’m on Simlandi biweekly injections.
I have had to have my knee drained 4 times in the past month and now I’m flaring up again and I’m not sure if anyone else has had this issue of their knee filling back up within 5 days.
I drank wine the other night and idk if that’s what triggered it but I also don’t know what else to do. I keep compression on it with an ACE bandage but that’s not working. I feel very lost and very hopeless bc I have had to pause many activities I love doing